Saturday, October 3, 2009

The Susan G. Komen 3 Day Walk and My Everyday Superheroes

Hi, everyone. In just a little over a month from now, the Susan G. Komen 3 Day Walk for the Cure will be held in Phoenix. It is sometimes hard to believe an entire year has gone by since I was first diagnosed. The Phoenix walk started last November on the very same day that I recieved the official word that I did indeed have breast cancer. At the same time I was sitting in my doctor's office trying to absorb the news, hundreds of men and women were walking past my elementary school in Gilbert, Arizona. My students were out cheering the walkers on and I felt in my heart cheering me on, too.

Earlier this year, my sister, Pam, my daughter, Janaya, my husband, Joe, and I decided that we were going to participate in the walk this year. We have experienced first-hand the benefits of the continuing research into better treatments and hope one day a possible cure for breast cancer will be discovered. We knew we wanted to do something to contribute to the effort of making breast cancer a thing of the past; something our children wouldn't have to deal with. For me, it would also be an emotional celebration, a chance to show that the cancer hadn't beaten me.

Unfortunately, although all indications are that I'm cancer free at the moment, I'm not physically ready to actually walk myself. I found out this past week that I am going to need to have plastic surgery, some type of skin graft, to repair damage done to my incision by the radiation. I also have another course of chemo ahead of me when I heal from that procedure. I am so disappointed. However, I will be out there with my students, cheering on this year's walkers. Among them will be Pam, Janaya, and Joe - my everyday superheroes. On those three days in November, they will walk a total of 60 miles, but they have already walked a million steps with me on this journey over the past year. Without their love and support and their being there for me every step of the way, I know I wouldn't have had the strength to face the physical and emotional battles I've had to.

I am not alone in facing these challenges. One in every eight women will be diagnosed with breast cancer. Every time I'm with a large group of women, at the gym, at the grocery store, at school, I think of what that means, of the lives that will be impacted.

I've posted two videos from the 3-Day website below. I think they are powerful. They are recruiting walkers, but I think they also give you an idea of the type of people who walk and why they walk. If you'd like to help support my superheroes and all of the other men and women that fight this battle or know someone who is or has fought, please visit their website. It is www.the3day.org. Click on make a donation and search for Pam Regan, Janaya Hitzel, or Joseph Hitzel. Together, their goal is to raise $6,900.

Thank you from the bottom of my heart!
Martha




Monday, September 21, 2009

A Short Update and Michael News

Update:
Hi, everyone. I am, again, in a holding pattern. My doctors all agree that I need to give myself time to heal from the radiation before starting my new chemo. Part of me is relieved to have a break and another part of me is just very anxious to get going on it so I can get it behind me. As always, it is very nerve-wracking to just wait and not be doing anything proactive against the cancer returning. I know I can't be in treatment forever(at least I hope not!) and I will have to get used to living with the fear at some level, but it is not easy. My skin has finally almost completely healed from the radiation. It honestly looked so bad a couple of weeks ago that I would never have believed it if I was told it would heal this well,this quickly. The problem is that the radiation eroded part of my incision and so it has to heal from the inside out and that is going to just take time. I still am battling fatigue, especially by the end of the day, but I'm told that can take months to get better. Being in the classroom each day continues to be a source of energy and happiness for me. I have the most amazing kids!

Michael News
Two fun things to let you know about Michael. He decided this year to go out for the swim team. He is a senior this year and hadn't been on the team before, but it is a no cut sport and so he has been able to become a part of the team. It is a really nice group of kids that swim and besides occupying a lot of his time with practice and meets, he has a nice group of kids from the team he hangs out with. He came home at the end of the first week of practice with a Swimmer of the Week t-shirt. We are so proud of him. I got to go see him compete this past Thursday. Here is a short video of him participating in the 50 meter freestyle.



The other news is kind of funny. The senior class was having elections this past week for the yearbook;things like the most likely to succeed, etc. Well, one of the categories was best hair. Michael wanted to win one of the categories and worked at convincing his friends that they should vote for him for best hair. Well, I'm his mom and he is a very good looking young man, but his hair is pretty ordinary even in my eyes. I guess it was in the eyes of his friends,too, because they only agreed to vote for him if he would cut his hair in a "cul-de-sac." If you are like me, you've never heard of this style before. I think the pictures below will clear up any confusion you might have.




This last picture is one of the ones they took for the yearbook with the girl who won best hair.

So, that is all the news fit to print for now!
Love you all!
Martha

Tuesday, September 8, 2009

A Fantastic Labor Day Weekend!

Hi, everyone. No news on the cancer front except that my skin is very slowly turning the corner and starting to heal. Finally! For me, radiation was definitely worse than the surgery was. But, it's in the past, another thing I've survived through and hopefully am stronger for.

Joe and I had a wonderful weekend up north at our cabin with Joey. Janaya had to work and Michael had a football tailgate and swimming practice he didn't want to miss, so it was just the three of us. I'll post pictures below, but the absolute, very best part of the weekend was just getting to spend so much time with Joey. And, he was thrilled to bespending the time with us! I told Joe on our way home -"He actually likes us!"


Playing Risk.


Joe had just taken over the Middle East, so we made him wear a towel on his head.


Cuddling up under a blanket at the beginning of September in Arizona?!!


Even Brewski got into the laid back feeling of the weekend.



Hanging out by the campfire.


And my kids tell me I'm not funny!



Playing washers.


Riding the dirt bike and quad.

They say a picture tells the story and these certainly do. It was a great weekend and I miss Joey already!

Love and hugs!
Martha

Tuesday, September 1, 2009

Tumor Marker Results

Hi, everyone. I just wanted to share a piece of good news. Last Monday, while I was up in Tucson, I had tumor markers drawn. This is some kind of protein that shows up in the blood when there are cancer cells. It has something to do with dividing cells and that's all I know about it. It is normal to have some of this protein in the bloodstream. The normal range is 1-40 and today mine was 26! This is the lowest it has ever been. The last time I had them drawn they were 32. They may still be elevated more than they would normally be due to the effects of the radiation, which let me say are horrible! My skin is so sore! I'm miserable. :>( Luckily, I get to spend my days with my students and even though it hurts, it is not at the front of my thoughts all the time. By the time I get home, though, I am tired and really sore. Hopefully, it will start healing any day now. :>)

That's it for now! Just wanted to share the good news.

Love you all!
Martha

Thursday, August 27, 2009

Done With Radiation!

Yesterday was my last radiation treatment! Hooray! I really tolerated the treatments very well up until this last week. I told my friend, Nancy, it was like my skin finally held up the white flag and said enough is enough. I'm really sore, especially all along my incision area. The muscles underneath are very tight and sore, too. Dr. Kuske explained to me that the sun's radiation only effects the skin on the surface resulting in a sunburn. The radiation they used for my treatments penetrates all the way in to my muscle. He said my muscle probably looks like a medium rare steak right now. It sure feels like it. But, the treatments are done and healing can begin!

Joe got home from work early so he could go with me to the last treatment. Then, when we arrived home, Janaya had prepared a special dinner in celebration; lemon-herb chicken and watermelon and arugula salad. It was yummy! When we were done eating, she presented me with a peace bracelet from Brighton's. It is beautiful and I love it. She is such an amazing young woman!

Joe and I went up to Tucson on Monday to meet with Dr. Livingston. We didn't really recieve any new news. He just went over the plan he had discussed with us after my surgery. In about three weeks, I will start on a new chemo called Navelbine. It will be given once a week through my port for a total of twelve treatments. I will continue on the oral chemo, Xeloda, that I've been taking since my surgery, just at a higher dose. Dr. Livingston is also going to try and get my insurance to approve a drug called Zometa which in a study done in Europe has been shown to reduce the occurance of bone metastasis - one of breast cancer's favorite places to reemerge.

Dr. Livingston will continue to plan and coordinate my care, but I will be seeing a new oncologist, Dr. Wendt, here in Phoenix. This will allow me to get my weekly chemo and still continue to work without having to take a day off every week. I have an appointment to meet Dr. Wendt in two weeks. We've heard really wonderful things about him and he did some of his training with Dr. Livingston.

Going up to the cancer center this week hit me hard emotionally. I have been trying really hard to get on with living my life in a positive way and minimize the role cancer plays. It is very easy each day when I am at school with my students and friends. Each night, however, when I get home and am feeling exhausted, and the wig comes off and the prosthetic bra comes off and it's just me and the mirror, it is hard to escape. It is really hard to not let thoughts of recurrence consume me. When we arrived at the cancer center the fact that I am a cancer patient hit me full force. Seeing all the patients in various stages of disease is scary. It may be my imagination, but Dr. Livingston has seemed to be more serious to me since my surgery. He didn't say anything this time about being optimistic. I know this doesn't really mean anything: he probably didn't even realize it meant so much to me each time he's said it in the past. One good piece of news. I asked him when they talked about survival rates, when they started counting and he said from time of diagnosis. This means that I am already a nine month survivor! I was afraid it was from time of surgery which hasn't been that long.

So, that's it for now. Not much new; just continuing with the treatment plan and continually hoping for the best. School is going wonderfully and I absolutely love my students.

Till next time,
Love you all!
Martha

Saturday, August 15, 2009

A Fabulous First Week of School!

Hi, everyone! This week was my first week back to school with kids. It was awesome! I have 29 4th graders and each is sweeter and nicer than the next. I feel like a whole person again. I can't post a picture of them yet, because I'm not sure if I have photo releases for everyone, but here are some pictures of their mini-me's they made.





Aren't they cute?

Here is one member of our class I didn't need a photo release form for. He is our class pet, a rat named Oreo. This isn't a very good picture. Janaya took it with her phone camera. I'll try to get a better one for my next post.



It is great being back with all my friends at school, too. Everyone has been absolutely wonderful. I have gotten so many hugs and heard "welcome back, we missed you" from so many people. People are so nice and are always offering to help. I know I work at the best place and with the best people ever.

I am doing really good! I only have eight treatments left to go in my radiation. The therapist that does them each evening has warned me that these last two weeks will be the most difficult, but so far I continue to do just fine. My skin is getting red, but it isn't really sore. I'm exhausted when I leave school each day, but so is everyone else. I will be glad when I don't have to make the trek to Scottsdale every evening though!

I know this post is going to end up long, but I want to share this story. I think it shows what amazing doctors I have caring for me. Once a week, I meet with the radiation oncologist so he can check on me and see how I'm doing. This week, he came into the radiation room while I was on the table because he had to make markings on my chest to get ready to do the booster treatments to my incision that are done the last five days of treatments. I always feel a little self conscious, but it was worse in this setting. I'm laying there on the table with nothing on from the waist up, my chest scarred and red, he's drawing all over me with magic marker, and then he looks up and starts to say something to me and then stops and says, "Do you know you are beautiful? You are. I hope your husband tells you that every night." Now, this might sound creepy to some, but it wasn't. He was just being so nice to me. My therapist was in the room and everything. I thought I was going to cry, but instead just grinned from ear to ear. Joe does tell me all the time that I'm beautiful, but even though I know he truly means it, I still don't feel very beautiful some days. I went home that night with an extra bounce in my step. I have the nicest, kindest, most caring doctors any person could hope to have.

Guess what? I have a full set of eyelashes now and my hair has continued to grow in with the chemo I'm on right now. I'm so hoping the next chemo doesn't make it fall out! It grows very, very slowly and having to start from scratch again would be so discouraging. Here is a picture of my hair right now.


I left my camera at school so this is taken with Janaya's phone again.

I have an appointment with Dr. Livingston on the 24th, two days before I'm done with radiation. My understanding is that at that point he will decide what chemo he wants me to do. He will be sending his treatment plan to an oncologist in Phoenix so I can get the chemo without making the trip to Tuscon and still continue to work. I am doing so well right now, it is scary to think about starting something new. But, it will only be for twelve weeks. I keep telling myself it can't be any worse than anything else I've gone through so far.

My family is doing fine. Pam returned to NJ after being an absolutely amazing help in getting my room set up. I am kind of a slow pokey worker. She's a no messing around, let's get down to business type of worker. She got done in one day what would have taken me a week to do! My niece, Mary, came with her. Here is a picture I took of her enjoying the pool.


Isn't she beautiful?!
Janaya and Joey are enjoying their last few days before NAU and ASU start up again. Michael started his senior year. He decided to do swim team this year and is enjoying it so far, but is exhausted in the evenings. Probably a good thing for a teenager to be, don't you think? He is really struggling with what he wants to do next year. He has talked about wanting to be an engineer and work in the automotive industry for as long as I can remember. But, last year, he had the most amazing social studies teacher. Michael was so inspired by him, he is seriously considering getting his degree in secondary education so he can teach history. A teacher who can inspire a young person that way is one to be valued. Unfortunately, the last we knew, he had lost his teaching position in the district due to the budget cuts. It makes me sad to know we lost a truly gifted teacher at a time when our kids need role models like him more than ever.

Well, this has gotten really long! I just have so much good going on in my life right now and wanted to share it with everyone.

Hoping your lives are as happy and wonderful as mine is right now!
Love you all tons!
Martha

Tuesday, August 4, 2009

Halfway!

Today was day 17 out of 33, so I am halfway through my radiation treatments. Hooray! Each day I go now, I have more behind me than ahead of me. My skin is starting to look a little sunburned, but I keep putting on the aloe vera. So far, not too bad. I don't know if it's because I am so excited to be returning to teaching or what, but I'm not experiencing the overwhelming fatigue I was warned about. I have been busy all day every day and am handling it very well. I am pretty tired by the evening though.

Tomorrow is my first official day back at school and the kids start on Monday. I'm jumping out of my skin, I'm so excited! Pam has been helping me get the classroom ready and it looks great if I do say so myself. This is one of my favorite times of the school year. I love imagining what each of my students will be like and what experiences we will have together over the coming school year. Thursday is Meet the Teacher night and I can't wait.

Yesterday was my official birthday, but because we traveled up to Flagstaff over the weekend to visit Joey and watch the Cardinals practice, it feels like we celebrated for three days. Joe got me a Larry Fitzgerald jersey. Then, he was at some kind of business group meeting and was talking to Tim Bidwell. He told him I was going to take the jersey to Flagstaff with us and try to get Larry to sign it. Well, Tim, who I've never met, told Joe he would make sure it got signed. He came and found us on Saturday and took my jersey into the locker room and got it signed. I was so excited. Tim was very nice and I really appreciated his going out of his way to do something nice for someone he didn't even know.


This is a picture of me in my jersey.

Watching practice was a lot of fun. It was awesome having players that I've only seen on TV just a few feet away. Curt Warner was the most awesome. He came over to the sideline and got the whole crowd to do the wave. Then, after practice he spent a long time signing autographs and focused almost exclusively on signing for the kids.

It was great to see Joey. He was working so much he just had time to have dinner on Saturday and breakfast on Sunday with us. He works at the NAU dome and was part of the Cardinal crew. He was given two t-shirts that say Cardinal's Crew with the team logo on the front and Cardinal's security on the back. Pretty cool! He is working really long days with the training camp going on and with only his final exam to go has a high B in his statistics class. Have I mentioned lately how proud we are of him?

Janaya is also finishing up a summer school class and is looking forward to going to Las Vegas. She gave me an awesome present for my birthday. We both love to watch So You Think You Can Dance. Last year, I bought tickets for the two of us to go to the concert. This year, when they went on sale, I told her I would look into getting the tickets again. But then, when I went to order them, I was hesitant about spending the money. Between the medical expenses and money I've spent on my classroom it just didn't seem like a good idea. She was completely understanding. Guess what she got me?! Tickets to the show. I'm really excited about getting to see the show, but am mostly thrilled about going with Janaya. It is so fun that she is at the age where we can do things together like this.

Michael is back from a great trip to NJ and is trying to make the most of the few days he has left before school starts. He's not quite as excited as I am. :>) He is a senior this year!

Well, that is it for now from the Hitzel household.

Lots of love to everyone!
Martha